RP Gene Research Foundation is dedicated to accelerating research for treatments for Retinitis Pigmentosa, including PRPF31
RP Gene Research Foundation is dedicated to accelerating research for treatments for Retinitis Pigmentosa, including PRPF31
Retinitis Pigmentosa (RP) is a group of rare, inherited eye diseases that cause gradual vision loss. It happens when the light-sensitive cells in the retina, called photoreceptors, break down over time. This leads to difficulty seeing in low light, loss of peripheral (side) vision, and eventually, central vision loss.
In this video we share our story.
I write a lot about Retinitis Pigmentosa to try and raise awareness for the disease that afflicts both of my children. As a family, it’s difficult to balance privacy with awareness. It is also difficult to expose your vulnerability to others. But in the end, finding a cure is the most important thing, as is raising money for research.
Your donation makes a difference in the lives of all of those who are diagnosed with Retinitis Pigmentosa, as well as the PRPF 31 gene.
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