Welcome to rpgene.org, operated by the RP Gene Research Foundation. This foundation is dedicated to advancing research into Retinitis Pigmentosa (RP) and exploring its genetic basis.
This Privacy Policy outlines how we collect, use, and protect information when you visit our website or utilize our services, such as signing up for our newsletter. The RP Gene Research Foundation is committed to ensuring data protection and keeping your personal information confidential and secure.
Information Collected
We may collect both personal and non-personal information.
Personal Information: This includes details you voluntarily provide, such as your name and email address, typically when signing up for our newsletter.
Non-Personal Information: This consists of anonymous data about your visit, including your IP address and the pages you visit, which we gather through website analytics.
How Information Is Used
The information we collect supports our RP research initiatives, facilitates communication (if you subscribe to our newsletter), and helps improve our website.
Information Sharing and Disclosure
The RP Gene Research Foundation will NOT sell, rent, or trade your personal information. We may share information in limited situations: with service providers who assist in operating our website, for legal compliance, to protect rights, or in the event of a merger or acquisition.
Data Security
We take reasonable steps to protect your personal information; however, please note that no online data transmission can be guaranteed to be completely secure.
Your Rights
You have the right to access, correct, or request deletion of your personal information, and you can opt-out of communications at any time.
Children's Privacy
Rpgene.org is not intended for children under the age of 13, and we do not knowingly collect their personal information.
Updates to This Privacy Policy
This policy may be updated from time to time, and we will notify you of significant changes. We encourage you to review it periodically.
Contact Information
For any questions regarding this policy or our data protection practices, please contact the RP Gene Research Foundation at info@rpgene.org.
Copyright © 2025 RP Gene Research Foundation - All Rights Reserved.
(980) 337-4411
RP Gene Research Foundation is a qualified 501(c)(3) non-profit organization and all donations are tax deductible to the extent of IRS regulations.
Tax ID 99-3640771
We will never sell your information and only use cookies to analyze website traffic in order to optimize your website experience and enable access to our chat function.