Welcome to RP Gene Research Foundation!

Welcome to rpgene.org, operated by the RP Gene Research Foundation. The foundation is dedicated to advancing research into Retinitis Pigmentosa (RP) and its genetic basis. 

This Privacy Policy explains how information is collected, used, and protected when you visit the website or use the services, like signing up for the newsletter. The foundation is committed to keeping personal information confidential and secure.

Information Collected

Both personal and non-personal information may be collected.

• Personal Information: This includes information provided voluntarily, such as name and email address, typically when signing up for the newsletter.

• Non-Personal Information: This is anonymous data about your visit, like your IP address and pages visited, collected through website analytics.

How Information Is Used

The collected information supports RP research, communication (if you subscribe to the newsletter), and website improvement.

Information Sharing and Disclosure

The RP Gene Research Foundation will NOT sell, rent, or trade personal information. Information may be shared in limited circumstances: with service providers who help operate the website, for legal compliance, to protect rights, or in the event of a merger or acquisition.

Data Security

Reasonable steps are taken to protect personal information, although no online data transmission is completely secure.

Your Rights

You have the right to access, correct, or request deletion of personal information, and you can opt-out of communications.

Children's Privacy

Rpgene.org is not intended for children under 13, and their personal information is not knowingly collected.

Updates to This Privacy Policy

This policy may be updated, and notification of significant changes will be provided. Review it periodically.

Contact Information

For questions about this policy or data practices, contact: 

RP Gene Research Foundation at info@rpgene.org